We are writing to express our concern about the changes proposed in the budget that will affect family care for the disabled and particularly the IRIS (Include, Respect, I Self Direct) program.
This program has provided funds for long-term support for those who need it.
It allows families to decide on a very important part of their child’s care, “who will come in to my home and care for my child when I cannot?”
Presently, caregivers can be chosen by the parent to offer continuity of caregiving and to fit the family’s needs.
The changes proposed will put the state in charge of what organizations provide care.
Part of our governor’s proposed budget policies are his desires for less governmental interference in people’s lives.
He proposes the right to work law so people may choose not to be in a union. He is a proponent of the voucher system for schools for parental choice.
But somehow, when the child happens to have a disability, the government then knows best.
This is a very confusing theory at the very least.
We understand the purpose of balancing a budget, but somehow, when we take from those who need it most, it reflects on those weighing those decisions.
The proposed changes from IRIS to family care are not equal.
Disability is never easy to live with but the feeling of having some control of your life goes a long way to help families cope.
We hope, as you read our concerns, you will make them your concern also.
How we serve the disabled within our communities reflects on us.
We can make a difference.
Bob and Rita Danielson